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Letter to the Editor
Quality of life in palliative patients admitted to their home: transversal study
Calidad de vida en pacientes paliativos hospitalizados en su domicilio: estudio transversal
Irene Llagostera-Revertera,b,
Corresponding author
llagosterairene@gmail.com

Corresponding author.
, Víctor Manuel González-Chordáb, María Isabel Orts-Cortésc
a Hospital Comarcal de Vinaros, Vinaros, Castellón, Spain
b Departamento de Enfermería, Universitat Jaume I, Castellón de la Plana, Spain
c Departamento de Enfermería, Universidad de Alicante, Instituto de Investigaciones Biomédicas y Sanitarias de Alicante (ISABIAL), Unidad de Investigación en Enfermería y Sanidad (Investén-isciii), CIBERFES, Instituto de Salud Carlos III, Madrid, Spain
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    "textoCompleto" => "<span class="elsevierStyleSections"><p id="par0005" class="elsevierStylePara elsevierViewall">Quality of life changes as disease progresses and a main goal of palliative care is to enhance&#44; support and preserve the highest possible quality of life&#46;<a class="elsevierStyleCrossRef" href="#bib0005"><span class="elsevierStyleSup">1</span></a> The international trend is to develop strategies that allow terminally ill patients to die at home&#46; These strategies are based&#44; among other things&#44; on survey results<a class="elsevierStyleCrossRef" href="#bib0010"><span class="elsevierStyleSup">2</span></a> indicating that the general population and terminally ill patients would prefer to receive end-of-life care at home&#46; However&#44; more studies are needed that assess the factors that influence the quality of life of palliative patients and their families to enable health professionals to design specific interventions&#46;</p><p id="par0010" class="elsevierStylePara elsevierViewall">We present as an example the results of a study whose main objective was to determine quality of life and its relationship with the palliative prognostic score&#44; functional status&#44; present symptoms&#44; and social support of subjects receiving palliative care in the Home Hospitalisation Unit of the Hospital Universitario Comarcal de Vinaroz &#40;Castell&#243;n&#41;&#46;</p><p id="par0015" class="elsevierStylePara elsevierViewall">A cross-sectional study was conducted with a sample of 43 subjects receiving palliative care in the Home Hospitalisation Unit&#46; Quality of life &#40;MQOL questionnaire&#41;&#44; functional capacity &#40;Barthel Index and Karnofsky Index&#41;&#44; symptom assessment &#40;ESAS questionnaire&#41;&#44; palliative prognostic score &#40;PaP Score&#41;&#44; and social support &#40;MOS questionnaire&#41; were studied&#46; A descriptive&#44; inferential correlational and multivariate analysis was performed using the statistical packages SPSS v&#46;20 and R&#46; The study was approved by the hospital management&#44; respecting the ethical principles established by the declaration of Helsinki&#46; All participants gave their informed consent for analysis of the data&#46;</p><p id="par0020" class="elsevierStylePara elsevierViewall">In terms of the profile of the participants&#44; the mean age was 77&#46;14 &#40;&#177; 11&#46;96&#41; years&#44; and 62&#46;79&#37; were men&#46; The mean score of the MQOL questionnaire was 83&#46;23 &#40;&#177;18&#46;87&#41; points and pain was the main physical symptom &#40;m&#8239;&#61;&#8239;7&#46;18&#8239;&#177;&#8239;2&#46;09&#41;&#46; The correlation between MQOL and PaP Score&#44; Barthel&#44; Karnofsky&#44; ESAS or MOS was not significant&#46; In contrast&#44; a significant correlation was found between PaP Score and Karnofsky&#44; PaP Score and ESAS&#44; Barthel and Karnofsky &#40;p&#8239;&#60;&#8239;&#46;05&#41;&#46;</p><p id="par0025" class="elsevierStylePara elsevierViewall">The results obtained allow us to interpret an average level of quality of life&#46;<a class="elsevierStyleCrossRef" href="#bib0015"><span class="elsevierStyleSup">3</span></a> With respect to its dimensions&#44; mean scores can be seen in each of the items that make up the MQOL questionnaire and in their respective total scores&#44; comparing them with other results obtained in the Vanbutsele study&#46;<a class="elsevierStyleCrossRef" href="#bib0020"><span class="elsevierStyleSup">4</span></a></p><p id="par0030" class="elsevierStylePara elsevierViewall">Despite the results obtained in this study&#44; where no major needs are identified&#44; in recent years in the field of palliative care&#44; the nurse-patient relationship has been highlighted as an indispensable part of care&#44; since this relationship helps address the suffering of the sick person&#46; There is a lack of consensus in the literature when referring to this relationship&#44; which makes it a nebulous concept&#44;<a class="elsevierStyleCrossRef" href="#bib0025"><span class="elsevierStyleSup">5</span></a> although it is evident that it brings benefits to both the patient and the nurse and facilitates care&#46; A greater understanding of the importance of the nurse-patient relationship could result in an increase in the quality of patient care and&#44; therefore&#44; in quality of life&#46;</p><p id="par0035" class="elsevierStylePara elsevierViewall">However&#44; this study is not without limitations&#46; The sample size is small and limited to one institution&#44; and therefore the results should be interpreted with caution&#46; Despite these limitations&#44; it is an indication of the real needs of palliative patients through an exhaustive and specific nursing assessment to plan palliative care according to disease stage and the presence of comorbidities&#46;</p><p id="par0040" class="elsevierStylePara elsevierViewall">To conclude&#44; although the quality of life of the sample studied is average&#44; it is important to continue developing studies that focus on the dimensions affected by quality of life and their relationship with other variables when designing interventions for patients receiving palliative care&#46;</p></span>"
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Article information
ISSN: 24451479
Original language: English
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es en pt

¿Es usted profesional sanitario apto para prescribir o dispensar medicamentos?

Are you a health professional able to prescribe or dispense drugs?

Você é um profissional de saúde habilitado a prescrever ou dispensar medicamentos