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Original article
Available online 12 December 2024
Inflammatory bowel disease in the gypsy community in England and Scotland
Enfermedad inflamatoria intestinal en la comunidad gitana de Inglaterra y Escocia
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Affifa Farrukh, John F. Mayberry
Corresponding author
johnfmayberry@yahoo.co.uk

Corresponding author.
Nuffield Hospital, Leicester LE5 5HY, United Kingdom
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Statistics
Tables (3)
Table 1. Number of NHS trusts in England contacted through a freedom of information request related to hospital admissions with inflammatory bowel disease in the gypsy community.
Table 2. Hospital admissions for inflammatory bowel disease in England between 2016 and 2022.
Table 3. Hospital admissions for inflammatory bowel disease in Scotland between 2016 and 2022.
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Abstract
Introduction

The travelling community in England and Scotland may consist of between 150,000 and 500,000 members. In Scotland ethnicity codings for hospital admissions includes: Gypsies, Roma, Irish travellers and show people. Few Trusts in England break down codings for “Other British” in such detail.

Method

One hundred and thirty-two NHS Trusts were approached in England and 14 NHS Boards in Scotland through a Freedom of Information request to provide details of admission to hospital between 2016 and 2022 with ulcerative colitis and had undergone a panproctocolectomy and those with Crohn's disease and had undergone a hemicolectomy.

Results

Of the 132 NHS Trusts approached in England only 7 were able to provide data on hospital admissions for inflammatory bowel disease from this community; whereas in Scotland 13 of 14 did so. There were 1012 admissions with ulcerative colitis and based on the number of admissions per patient in Somerset NHS Foundation Trust this would represent 138 patients. In contrast, there were 901 admissions with Crohn's disease and at least 9 patients underwent a hemicolectomy.

Conclusion

The inadequacy of data collection related to this community is discussed.

Keywords:
Inflammatory bowel disease
Epidemiology
England
Scotland
Freedom of information
Resumen
Introducción

La comunidad itinerante en Inglaterra y Escocia puede estar compuesta por entre 150.000 y 500.000 miembros. En Escocia, los códigos étnicos para los ingresos hospitalarios incluyen: gitanos, romaníes, viajeros irlandeses y gente del espectáculo. Pocos Trusts en Inglaterra desglosan las codificaciones de “Otros británicos” con tanto detalle.

Método

Se contactó a 132 Trusts del NHS en Inglaterra y a 14 Boards del NHS en Escocia a través de una solicitud de Libertad de Información para proporcionar detalles de ingreso al hospital entre 2016 y 2022 con colitis ulcerosa y se habían sometido a una panproctocolectomía y aquellos con enfermedad de Crohn y habían tenido sometido a una hemicolectomía.

Resultados

De los 132 Trusts del NHS consultados en Inglaterra, sólo 7 pudieron proporcionar datos sobre admisiones hospitalarias por enfermedad inflamatoria intestinal en esta comunidad; mientras que en Escocia lo hicieron 13 de 14. Hubo 1012 ingresos con colitis ulcerosa y, según el número de ingresos por paciente en Somerset NHS Foundation Trust, esto representaría 138 pacientes. Por el contrario, hubo 901 ingresos con enfermedad de Crohn y al menos 9 pacientes fueron sometidos a hemicolectomía.

Conclusión

Se discute la insuficiencia de la recopilación de datos relacionados con esta comunidad.

Palabras clave:
Enfermedad inflamatoria intestinal
Epidemiología
Inglaterra
Escocia
Libertad de información

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