covid
Buscar en
Psychosocial Intervention
Toda la web
Inicio Psychosocial Intervention Empowered and disempowered voices of low-income people with disabilities on the ...
Journal Information
Vol. 23. Issue 2.
Pages 115-123 (August 2014)
Vol. 23. Issue 2.
Pages 115-123 (August 2014)
Open Access
Empowered and disempowered voices of low-income people with disabilities on the initiation of government-funded, managed health care
La opinión autorizada y desautorizada de personas de bajos ingresos al iniciar la asistencia sanitaria gestionada financiada públicamente
Visits
4954
Kathleen McAuliff
Corresponding author
katie.mcauliff@gmail.com

Corresponding author.
, Judah J. Viola, Christopher B. Keys, Lindsey T. Back, Amber E. Williams, Crystal N. Steltenpohl
Department of Disability and Human Development, University of Illinois at Chicago, U.S.A
This item has received

Under a Creative Commons license
Article information
Abstract

The health and healthcare of vulnerable populations is an international concern. In 2011, a Midwestern state within the U.S. mandatorily transitioned 38,000 Medicaid recipients from a fee-for-service system into a managed care program in which managed care companies were contracted to provide recipients’ healthcare for a capitated rate. In addition to cost savings through reductions in preventable and unnecessary hospital admissions, the goals of the managed care program (MCP) included: (1) access to a more functional support system, which can support high and medium risk users in the development of care plans and coordination of care, and (2) choice among competent providers. The population transitioned was a high-need, high-cost, low-income, and low-power group of individuals. The evaluation research team used focus groups as one of many strategies to understand the experience of users during the first two years of this complex change effort. The article explores empowerment in terms of users and their family caregivers’ ability to make meaningful choices and access resources with regard to their healthcare. Specifically, factors empowering and disempowering users were identified within three thematic areas: (1) enrollment experiences, (2) access to care and (3) communication with managed care organizations and providers. While the change was not optional for users, a disempowering feature, there remained opportunities for other empowering and disempowering processes and outcomes through the transition and new managed care program. The results are from 74 participants: 65 users and 9 family caregivers in 11 focus groups and six interviews across two waves of data collection. MCP users felt disempowered by an initial lack of providers, difficulty with transportation to appointments, and challenges obtaining adequate medication. They felt empowered by having a choice of providers, good quality of transportation services and clear communication from providers and managed care organizations. Recommendations for increasing prospects for the empowerment of healthcare users with disabilities within a managed care environment are presented.

Keywords:
Managed care
Marginalized group
Disability
Healthcare policy
Resumen

La salud y su atención en poblaciones vulnerables preocupa internacionalmente. Un Estado del medio-oes-te estadounidense en 2011 traspasó obligatoriamente a 38.000 receptores de Medicaid de un sistema de pago por servicio a un programa de asistencia gestionada en el que se contrataba a empresas de asistencia gestionada para la prestación de asistencia sanitaria a los usuarios por una cuota por persona. Además de los ahorros por la disminución de admisiones hospitalarias evitables e innecesarias, los objetivos del programa gestionado de asistencia incluían: (1) el acceso a un sistema de apoyo más funcional para usuarios de un riesgo elevado y medio en el desarrollo de planes de asistencia y coordinación de la misma y (2) la elección entre proveedores competentes. La población a la que afecta este traspaso era un grupo de personas muy necesitadas, que entrañaban costes elevados, con un nivel bajo de ingresos y de poder. El equipo investigador de evaluación utilizó grupos de discusión como una de las muchas estrategias para entender la experiencia de los usuarios durante los dos primeros años de este esfuerzo complejo de cambio. El artículo explora el “empowerment” en cuanto a los usuarios y a la capacidad de quienes prestan asistencia a su familia de tomar las decisiones oportunas y acceder a los recursos relativos la prestación de asistencia sanitaria. En concreto, los factores que reforzarían o debilitarían a los usuarios pueden pertenecer a tres áreas temáticas: (1) experiencias de enrolamiento, (2) acceso a la asistencia y (3) la comunicación con las organizaciones con quienes proporcionan asistencia sanitaria gestionada. A pesar de que el cambio no era optativo para los usuarios, un aspecto negativo, aún quedaba margen para otros procesos de capacitación, incapaci-tación y resultados gracias a la transición y al nuevo programa gestionado de asistencia. Se dispone de resultados de 74 participantes, 65 usuarios y 9 personas que prestan asistencia a la familia en 11 grupos de discusión, con 6 entrevistas en dos tandas de recogida de datos. Los usuarios del programa gestionado de asistencia sintieron desvalimiento por la falta inicial de proveedores, los problemas de transporte a las citas y para conseguir la medicación adecuada. En cambio se sintieron reforzados por el hecho de tener una gama de proveedores, una buena calidad de servicios de transporte y comunicación clara por parte de los proveedores y de las organizaciones de asistencia gestionada. Se ofrecen recomendaciones para mejorar las perspectivas de reforzamiento (empowerment) de los usuarios de asistencia sanitaria con discapacidades en un entorno de prestación gestionada de asistencia.

Palabras clave:
Asistencia gestionada
Grupo marginado
Discapacidad
Políticas de asistencia sanitaria
Full text is only aviable in PDF
References
[Allen et al., 2012]
E.P. Allen, W. Cappelletto, S. Siegel.
The impact of state Medicaid reform on vulnerable populations needing long-term care services and supports: An analysis of Florida, Illinois, and New Jersey.
NAELA Journal, 8 (2012), pp. 125-161
[Auerbach and Silverstein, 2003]
C.F. Auerbach, L.B. Silverstein.
Qualitative data: An introduction to coding and analysis.
New York University Press, (2003),
[Berenson and Rich, 2010]
R.A. Berenson, E.C. Rich.
US Approaches to physician payment: The deconstruction of primary care.
Journal of General Internal Medicine, 25 (2010, May), pp. 613-618
[Betancourt et al., 2003]
J.R. Betancourt, A.R. Green, J.E. Carrillo, O. Ananeh-Firempong 2nd.
Defining cultural competence: a practical framework for addressing racial/ethnic disparities in health and health care.
Public Health Reports, 118 (2003), pp. 293-302
[Bielaszka-DuVernay, 2011]
C. Bielaszka-DuVernay.
Improving the coordination of care for Medicaid beneficiaries in Pennsylvania.
Health Affairs, 30 (2011), pp. 426-430
[Bond and Keys, 2014]
Bond, M.A., & Keys, C. Empowerment, diversity, and collaboration: Promoting synergy on community boards. American Journal of Community Psychology, 21, 37-58.
[Centers for Medicare and Medicaid Services, 2014]
Centers for Medicare & Medicaid Services (n.d.). Key milestones in CMS programs.
[Croom et al., 2011]
A. Croom, D.J. Wiebe, C.A. Berg, R. Lindsay, D. Donaldson, C. Foster, M.T. Swinyard.
Adolescent and parent perceptions of patient-centered communication while managing type 1 diabetes.
Journal of pediatric psychology, 36 (2011), pp. 206-215
[Dorsey, 1975]
J.L. Dorsey.
The Health Maintenance Organization Act of 1973 (PL 93-222) and prepaid group practice plans.
Medical Care, 13 (1975), pp. 1-9
[Drainoni et al., 2006]
M.-L. Drainoni, E. Lee-Hood, C. Tobias, S.S. Bachman, J. Andrew, L. Maisels.
Cross-disability experience of barriers to health-care access: Consumer perspectives.
Journal of Disability Policy Studies, 17 (2006), pp. 101-115
[Fiscella et al., 2000]
K. Fiscella, P. Franks, M.R. Gold, C.M. Clancy.
Inequality in quality: addressing socioeconomic, racial, and ethnic disparities in health care.
JAMA, 283 (2000), pp. 2579-2584
[Foster-Fishman et al., 1998]
P.G. Foster-Fishman, D.A. Salem, S. Chibnall, R. Legler, C. Yapchai.
Empirical support for the critical assumptions of empowerment theory.
American Journal of Community Psychology, 26 (1998), pp. 507-536
[Hare et al., 2006]
C. Hare, J. Law, C. Brennan.
The vulnerable healthcare consumer: An interpretive synthesis of the patient experience literature.
International Journal of Consumer Studies, 37 (2006), pp. 299-311
[Jurkowski et al., 2002]
E. Jurkowski, B. Jovanovic, L. Rowitz.
Leadership/citizen participation: perceived impact of advocacy activities by people with physical disabilities on access to health care, attendant care and social services.
Journal of Health & Social Policy, 14 (2002), pp. 49-61
[Kim et al., 2008]
S.C. Kim, S. Kim, D. Boren.
The quality of therapeutic alliance between patient and provider predicts general satisfaction.
Military Medicine, 173 (2008), pp. 85-90
[Koh et al., 2013]
H.K. Koh, C. Brach, L.M. Harris, M.L. Parchman.
A proposed ‘health literate care model’ would constitute a systems approach to improving patients’ engagement in care.
Health Affairs, 32 (2013), pp. 357-367
[Marmot, 2013]
Marmot, M. (2013). Health inequalities in the European Union: Final report of a consortium. Brussels: European Commission Directorate-General for Health and Consumers. ISBN 978-92-79-30898-7. doi: 10.2772/34426.
[Medicaid, 2014]
Medicaid (2014). HYPERLINK http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Delivery-Systems/Medicaid-Managed-Long-Term-Services-and-Supports-MLTSS.html.
[National Association for States, 2014]
National Association for States United for Aging and Disability (2014). http://www. nasuad.org.
[Rappaport, 1987]
J. Rappaport.
Terms of empowerment/exemplars of prevention: Toward a theory for community psychology.
American Journal of Community Psychology, 15 (1987), pp. 121-148
[Ravesloot et al., 2005]
C. Ravesloot, T. Seekins, G. White.
Living Well With a Disability health promotion intervention: improved health status for consumers and lower costs for health care policymakers.
Rehabilitation Psychology, 50 (2005), pp. 239-245
[Riger, 1993]
S. Riger.
What's wrong with empowerment.
American Journal of Community Psychology, 21 (1993), pp. 279-291
[Rohrer et al., 2008]
J.E. Rohrer, L. Wilshusen, S.C. Adamson, S. Merry.
Patient centeredness, self-rated health, and patien empowerment: should providers spend more time communicating with their patients?.
Journal of Evaluation in Clinical Practice, 14 (2008), pp. 548-551
[Root and Stableford, 1999]
J. Root, S. Stableford.
Easy-to-read consumer communications: a missing link in Medicaid managed care.
Journal of Health Politics Policy and Law, 24 (1999), pp. 1-26
[Sekhri, 2000]
N.K. Sekhri.
Managed Care: The US Experience.
Bulletin of the World Health Organization., 78 (2000), pp. 830-844
[Thorpe et al., 2001]
K.E. Thorpe, E.E. Seiber, C.S. Florence.
The impact of HMOs on hospital-based uncompensated care.
Journal of Health Politics Policy, and Law, 26 (2001, June), pp. 543-555
[Wallerstein and Bernstein, 1994]
N. Wallerstein, E. Bernstein.
Introduction to community empowerment, participatory education, and health.
Health Education Quarterly, 21 (1994), pp. 141-148
[Vázquez et al., 2009]
M.L. Vázquez, I. Vargas, J. Unger, A. Mogollón, M. Silva, F. Rejane, P. Paepe.
Integrated health care networks in Latin America: toward a conceptual framework for analysis.
Revista Panamericana de Salud Pública, 26 (2009), pp. 360-367
[Zimmerman, 2000]
M.A. Zimmerman.
Empowerment theory.
Handbook of community psychology, pp. 43-63
Download PDF
Article options