Estudio desde la percepción de pacientes y familiares del proceso de participación informal en el cuidado después de un ictus: metodología y primeros resultados
Study of patients' and families' perceptionof lay caregiver participation in the care of stroke patients: methodology and preliminary results
M. Carmen Portillo Vegaa,
, Jenifer Wilson-Barnettb, M. Isabel Saracíbar Razquinc
Autor para correspondencia
mportillo@unav.es
Universidad de Navarra. Edificio de Ciencias. Escuela Universitaria de Enfermería. Irunlarrea, s/n. 31008 Pamplona. Navarra
Universidad de Navarra. Edificio de Ciencias. Escuela Universitaria de Enfermería. Irunlarrea, s/n. 31008 Pamplona. Navarra
a Diplomada en Enfermería. Máster en investigación en Enfermería por la Universidad de Londres (KCL). Profesor Encargado Interino deCurso (P.E.I.C) de Enfermería Médico-Quirúrgica. Escuela Universitaria de Enfermería. Universidad de Navarra
b King's College. Universidad de Londres
c Diplomada en Enfermería. Licenciada en Humanidade. Profesora Agregada de Enfermería Médico-Quirúrgica. Escuela Universitaria de Enfermería. Universidad de Navarra
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Navarra" ] ] ] ] "titulosAlternativos" => array:1 [ "en" => array:1 [ "titulo" => "Study of patients' and families' perceptionof lay caregiver participation in the care of stroke patients: methodology and preliminary results" ] ] "pdfFichero" => "main.pdf" "tienePdf" => true "fechaAceptado" => "2002-01-07" "PalabrasClave" => array:2 [ "es" => array:1 [ 0 => array:4 [ "clase" => "keyword" "titulo" => "Palabras clave" "identificador" => "xpalclavsec206522" "palabras" => array:5 [ 0 => "Accidente cerebrovascular" 1 => "Cuidado informal" 2 => "Investigación cualitativa" 3 => "Análisis de contenido" 4 => "Implicaciespara enfermería" ] ] ] "en" => array:1 [ 0 => array:4 [ "clase" => "keyword" "titulo" => "Keywords" "identificador" => "xpalclavsec206523" "palabras" => array:5 [ 0 => "Stroke" 1 => "Lay Caregivers" 2 => "Qualitative research" 3 => "Content analysis" 4 => "Implications for nursing" ] ] ] ] "tieneResumen" => true "resumen" => array:2 [ "es" => array:1 [ "resumen" => "<span class="elsevierStyleSectionTitle">Resumen</span><p id="spar0005" class="elsevierStyleSimplePara elsevierViewall">En la actualidad, entre las enfermedades con mayor incidencia se encuentra el accidente cerebrovascular. Por ello, la participación de la familia en el cuidado de las personas que lo han padecido es de gran relevancia. El objetivo general de este estudio ha sido conocer el proceso de participación informal en el cuidado de los pacientes después de un ictus. Se ha desarrollado en el Departamento de Neurología de la Clínica Universitaria de la Universidad de Navarra y del Hospital de Navarra y en la Asociación de Daño Cerebral de Navarra (ADACEN). Se realizó un análisis cualitativo del contenido de las entrevistas semiestructuradas llevadas a cabo con 8 pacientes que habían sufrido un ictus y con 14 familiares, para obtener un total de 23 temas y 83 categorías para pacientes, y 28 y 107, respectivamente, para familiares. El análisis fue un proceso inductivo que objetivó la necesidad de que los cuidadores informales y los pacientes reciban información y educación sobre este proceso, su tratamiento y rehabilitación. Todo ello mediante un asesoramiento y educación continuos</p>" ] "en" => array:1 [ "resumen" => "<p id="spar0010" class="elsevierStyleSimplePara elsevierViewall">Currently, stroke is one of the most frequent diseases. Therefore, family participation in the care of stroke survivors is of great importance. The general aim of this study was to explore lay caretaker participation in the care of stroke survivors. This study was conducted in the Neurology Department of the University Clinic of Navarre University (Spain) in conjunction with the Navarre Hospital and the Brain Damage Association of Navarre. A qualitative analysis of the contents of semi-structured interviews with 8 stroke patients and 14 relatives was performed. Twenty-three subjects and 83 categories were obtained for patients and 28 subjects and 107 categories were obtained for relatives. The analysis consisted of an inductive process that revealed the need for lay caretakers and patients to receive information and education on stroke, its treatment and rehabilitation. This should be achieved through evaluation and continuous education</p>" ] ] "bibliografia" => array:2 [ "titulo" => "Bibliografía" "seccion" => array:1 [ 0 => array:2 [ "identificador" => "bibs0005" "bibliografiaReferencia" => array:47 [ 0 => array:3 [ "identificador" => "bib0005" "etiqueta" => "1." "referencia" => array:1 [ 0 => array:2 [ "contribucion" => array:1 [ 0 => array:2 [ "titulo" => "Representaciones del cuidador familiar ante el anciano con ACV" "autores" => array:1 [ 0 => array:2 [ "etal" => false "autores" => array:2 [ 0 => "O. Guimaraes de Andrade" 1 => "R.A. 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