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Inicio Revista Portuguesa de Saúde Pública Psicoeducação familiar na demência: da clínica à saúde pública
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Vol. 29. Núm. 1.
Páginas 3-10 (enero - junio 2011)
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Vol. 29. Núm. 1.
Páginas 3-10 (enero - junio 2011)
Open Access
Psicoeducação familiar na demência: da clínica à saúde pública
Family psychoeducation in dementia: from clinical practice to public health
Visitas
9950
Manuel Gonçalves-Pereiraa,
Autor para correspondencia
gpereira.sm@fcm.unl.pt

Autor para correspondência.
, Daniel Sampaiob
a Departamento de Saúde Mental, Centro de Estudos de Doenças Crónicas, CEDOC, Faculdade de Ciências Médicas, FCM, Universidade Nova de Lisboa, Lisboa, Portugal. Membro-efectivo da Sociedade Portuguesa de Terapia Familiar, Portugal
b Serviço de Psiquiatria, Hospital de Santa Maria; Faculdade de Medicina, Universidade de Lisboa, Lisboa, Portugal. Fundador da Sociedade Portuguesa de Terapia Familiar, Portugal
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Información del artículo
Resumo
Introdução

Com o envelhecimento populacional e o impacto decorrente nas famílias, a demência tem vindo a adquirir um estatuto de grave problema de saúde pública. No quotidiano dos serviços de saúde, os aspectos familiares da demência são motivo frequente de apresentação clínica. Contudo, nesses mesmos serviços ou na comunidade, as necessidades das famílias são frequentemente subavaliadas ou não cobertas. Neste trabalho descrevemos as intervenções familiares na demência, revendo especificamente a eficácia e a efectividade da psicoeducação familiar.

Métodos

Procedemos a uma revisão narrativa, não sistemática, da literatura relevante.

Resultados

Existem diversas formas de intervenção familiar na demência, dirigidas a familiares-cuidadores (com pendor psicoeducativo ou de apoio emocional) ou com foco sistémico, na linha da terapia familiar. Independentemente do seu carácter predominantemente clínico, todas elas podem ser perspectivadas na interface da promoção da saúde.

A psicoeducação familiar visa, em específico, desenvolver conhecimentos e competências para lidar com o quadro demencial, diminuindo os níveis de “stress” na família, podendo eventualmente incidir na saúde mental positiva dos cuidadores.

Conclusões

Muitas estratégias de prevenção primária, secundária ou terciária nas demências seriam potenciadas pela literacia em saúde, a nível populacional, nos conteúdos relacionados com as doenças associadas ao envelhecimento.

Palavras-chave:
Demência
Doença de Alzheimer
Família
Cuidador informal
Psicoeducação
Intervenção familiar
Literacia em saúde
Abstract
Introduction

Across the last decades, ageing has largely contributed to position dementia as a huge public health problem, reflecting the burden on service users and their social networks, namely families and informal carers. In health services, family issues regarding dementia frequently lead to referrals. However, at service or community levels, family needs are often underestimated or unmet. In this study, we aimed to describe family interventions in dementia and to review the evidence for the efficacy and effectiveness of family psychoeducation in particular.

Methods

The review is based on the relevant literature, but is not intended to be systematic.

Results

There are several forms of family intervention in dementia, providing family-carers with psychoeducational strategies or support, or with an alternative emphasis on systemic interventions and classical family therapy. Regardless of their clinical focus, all these interventions may be informed by health promotion principles and values.

Family psychoeducation, for instance, aims to develop knowledge and skills making it easier to cope with the strain of dementia caregiving. There is evidence that this may lower family stress, while some psychoeducational interventions may additionaly focus on carers’ positive mental health.

Conclusions

Several primary, secondary or tertiary prevention strategies regarding dementia would be strengthened by population-based developments in mental health literacy, as related to brain aging and similar topics.

Keywords:
Dementia
Alzheimer's disease
Family
Informal caregiver
Psychoeducation
Family intervention
Health literacy
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Bibliografia
[1.]
C.P. Ferri, M. Prince, C. Brayne, H. Brodaty, L. Fratiglioni, M. Ganguli, et al.
Global prevalence of dementia: a Delphi consensus study.
Lancet, 366 (2005), pp. 2112-2117
[2.]
J. Georges, S. Jansen, J. Jackson, A. Meyrieux, A. Sadowska, M. Selmes.
Alzheimer's disease in real life — the dementia carer's survey.
Int J Geriatr Psychiatry, 23 (2008), pp. 546-551
[3.]
B. Nunes, R.D. Silva, V.T. Cruz, J.M. Roriz, J. Pais, M.C. Silva.
Prevalence and pattern of cognitive impairment in rural and urban populations from Northern Portugal.
BMC Neurol, 10 (2010), pp. 42
[4.]
Ministério da Saúde. DGS.
Rede de referenciação de psiquiatria e saúde mental.
Direcção-Geral de Saúde, (2004),
[5.]
M. Gonçalves-Pereira, R. Mateos.
A família e as pessoas com demência: vivências e necessidades dos cuidadores.
Psicogeriatria, pp. 541-560
[6.]
P. Campbell, J. Wright, J. Oyebode, D. Job, P. Crome, P. Bentham, et al.
Determinants of burden in those who care for someone with dementia.
Int J Geriatr Psychiatry, 23 (2008), pp. 1078-1085
[7.]
A.M. Gort, M. Mingot, X. Gomez, T. Soler, G. Torres, O. Sacristán, et al.
Use of the Zarit scale for assessing caregiver burden and collapse in caregiving at home in dementias.
Int J Geriatr Psychiatry, 22 (2007), pp. 957-962
[8.]
H. Brodaty, C. Thomson, C. Thompson, M. Fine.
Why caregivers of people with dementia and memory loss don’t use services.
Int J Geriatr Psychiatry, 20 (2005), pp. 537-546
[9.]
A.M. Cavaleiro, J.A. Carvalho-Teixeira.
Satisfação dos cuidadores de doentes de Alzheimer em relação à qualidade dos cuidados de saúde hospitalares.
Análise Psicológica, 17 (1999), pp. 369-373
[10.]
I. Martín, C. Paúl, J. Roncon.
Estudo de adaptação e validação da escala de avaliação de cuidado informal.
Psicologia, Saúde e Doenças, 1 (2000), pp. 3-9
[11.]
D. Figueiredo, L. Sousa.
Percepção do estado de saúde e sobrecarga em cuidadores familiares de idosos dependentes com e sem demência.
Rev Port Saúde Pública, 26 (2008), pp. 15-24
[12.]
C. Sequeira.
Cuidar de idosos dependentes.
Quarteto, (2007),
[13.]
G. Melo, J. Maroco, A. de Mendonça.
Influence of personality on caregiver's burden, depression and distress related to the BPSD.
Int J Geriatr Psychiatry, (2011),
[14.]
M. Gonçalves-Pereira, I. Carmo, J.A. da Silva, A.L. Papoila, R. Mateos, S.H. Zarit.
Caregiving experiences and knowledge about dementia in Portuguese clinical outpatient settings.
Int Psychogeriatr, 22 (2010), pp. 270-280
[15.]
L. Fernandes, M. Gonçalves-Pereira, A. Leuschner, S. Martins, M. Sobral, L.F. Azevedo, et al.
Validation study of the Camberwell Assessment of Need for the Elderly (CANE) in Portugal.
Int Psychogeriatr, 21 (2009), pp. 94-102
[16.]
M. Gonçalves-Pereira, D. Sampaio.
Trabalho com famílias em psiquiatria geriátrica.
Acta Médica Portuguesa, (2011),
[17.]
A.F. Jorm.
Mental health literacy.
Br J Psychiatry, 177 (2000), pp. 396-401
[18.]
P. Werner.
Lay perceptions about mental health: where is age and where is Alzheimer's disease.
Int Psychogeriatr, 17 (2005), pp. 371-382
[19.]
L.F. Low, K.J. Anstey.
Dementia literacy: recognition and beliefs on dementia of the Australian public.
Alzheimer & Dementia, 5 (2009), pp. 43-49
[20.]
E. Asen.
Psychological treatments: systemic interventions with older adults and their families.
Oxford textbook of old age psychiatry, pp. 263-272
[21.]
M.S. Mittelman, S.H. Ferris, E. Shulman, G. Steinberg, B. Levin.
A family intervention to delay nursing home placement of patients with Alzheimer disease.
JAMA, 276 (1996), pp. 1725-1731
[22.]
A.M. Pot, D.J. Deeg, C.P. Knipscheer.
Institutionalization of demented elderly: the role of caregiver characteristics.
Int J Geriatr Psychiatry, 16 (2001), pp. 273-280
[23.]
C.A. Richardson, C. Gilleard, S. Lieberman, R. Peeler.
Working with older adults and their families: a review.
Journal of Family Therapy, 16 (1994), pp. 225-240
[24.]
I. Cantegreil-Kallen, A.S. Rigaud.
Systemic family therapy in the context of Alzheimer's disease: a theoretical and practical approach. [La therapie familiale systemique dans le cadre de la maladie d’Alzheimer: approche theorique et pratique].
Psychol Neuropsychiatr Vieil, 7 (2009), pp. 253-263
[25.]
Alzheimer Portugal. Manual do cuidador. 2.ª ed. [Internet]. Lisboa: Associação Portuguesa de Familiares e Amigos dos Doentes de Alzheimer; 2006 [consultado 9 Dez 2010]. Disponível em: http://www.alzheimerportugal.org/scid/webAZprt/defaultArticleViewOne.asp?articleID=1020&categoryID=818.
[26.]
S. Madureira.
A educação dos cuidadores. Dossier: demências.
Rev Port Clínica Geral, 26 (2010), pp. 62-67
[27.]
M. Martín-Carrasco, M.F. Martín, C.P. Valero, P.R. Millán, C.I. García, S.R. Montalbán, et al.
Effectiveness of a psychoeducational intervention program in the reduction of caregiver burden in Alzheimer's disease patients’ caregivers.
Int J Geriatr Psychiatry, 4 (2009), pp. 489-499
[28.]
D.L. Johnson.
Models of family intervention.
Families as partners in mental health care: a guidebook for implementing family work, pp. 10-21
[29.]
L. Fernandes.
Dos factores biopsicológicos às intervenções multifamiliares e psicoeducacionais na asma.
Bial, (2009),
[30.]
M. Gonçalves-Pereira, M. Xavier, G. Fadden.
Modelo de Falloon para intervenção familiar na esquizofrenia: fundamentação e aspectos técnicos.
Análise Psicológica, XXV (2007), pp. 241-255
[31.]
C. Donaldson, N. Tarrier, A. Burns.
The impact of the symptoms of dementia on caregivers.
Br J Psychiatry, 170 (1997), pp. 62-68
[32.]
H. Fillit.
Drug discovery and the prevention of Alzheimer's disease.
Alzheimer's & Dementia, 4 (2008), pp. S26-S28
[33.]
P. Sakka, M. Tsolaki, J. Hort, K. Hager, H. Soininen, S. López Pousa, et al.
Effectiveness of open-label donepezil treatment in patients with Alzheimer's disease discontinuing memantine monotherapy.
Curr Med Res Opin, 23 (2007), pp. 3153-3165
[34.]
J.L. Cummings, L. Schneider, P.N. Tariot, P.R. Kershaw, W. Yuan.
Reduction of behavioral disturbances and caregiver distress by galantamine patients with Alzheimer's disease.
Am J Psychiatry, 161 (2004), pp. 532-538
[35.]
B. Winblad, A.K. Kawata, K.M. Beusterien, S.K. Thomas, A. Wimo, R. Lane, et al.
Caregiver preference for rivastigmine patch relative to capsules for treatment of probable Alzheimer's disease.
Int J Geriatr Psychiatry, 22 (2007), pp. 485-491
[36.]
B. Reisberg, R. Doody, A. Stöffler, F. Schmitt, S. Ferris, H.J. Möbius, et al.
Memantine in moderate-to-severe Alzheimer's disease.
N Engl J Med, 348 (2003), pp. 1333-1341
[37.]
F.J. Molnar, M. Man-Son-Hing, D. Fergusson.
Systematic review of measures of clinical significance employed in randomized controlled trials of drugs for dementia.
J Am Geriatr Soc, 57 (2009), pp. 536-546
[38.]
H. Brodaty, A. Green.
Defining the role of the caregiver in Alzheimer's disease treatment.
Drugs Aging, 19 (2002), pp. 891-898
[39.]
S. Sörensen, M. Pinquart, P. Duberstein.
How effective are interventions with caregivers?.: an updated meta-analysis.
Gerontologist, 42 (2002), pp. 356-372
[40.]
M. Sobral, A.R. Silva.
”Care Program” to reduce the burden of care giving for elderly with dementia.
Psiquiatria Clínica, Suppl (2006), pp. 77
[41.]
M.S. Mittelman, D.L. Roth, W.E. Haley, S.H. Zarit.
Effects of a caregiver intervention on negative caregiver appraisals of behaviour problems in patients with Alzheimer's disease: results of a randomised trial.
J Gerontol B Psychol Sci Soc Sci, 59 (2004), pp. P27-P34
[42.]
M. Guerra, C.P. Ferri, M. Fonseca, S. Banerjee, M. Prince.
Helping carers to care: the 10/66 dementia research group's randomized control trial of a caregiver intervention in Peru.
Rev Bras Psiquiatr, (2010),
[43.]
V.T. Cruz, J. Pais, A. Teixeira, B. Nunes.
Sintomas iniciais de doença de Alzheimer: a percepção dos familiares.
Acta Médica Portuguesa, 17 (2004), pp. 437-444
[44.]
A. Marriott, C. Donaldson, N. Tarrier, A. Burns.
Effectiveness of cognitive-behavioural family intervention in reducing the burden of care in carers of patients with Alzheimer's disease.
Br J Psychiatry, 176 (2000), pp. 557-562
[45.]
H. Brodaty, A. Green, A. Koschera.
Meta-analysis of psychosocial interventions for caregivers of people with dementia.
J Am Geriatr Soc, 51 (2003), pp. 657-664
[46.]
C. Cooper, T.B. Balamurali, A. Selwood, G. Livingston.
A systematic review of intervention studies about anxiety in caregivers of people with dementia.
Int J Geriatr Psychiatry, 22 (2007), pp. 181-188
[47.]
D.D. Cooke, L. McNally, K.T. Mulligan, M.J. Harrison, S.P. Newman.
Psychosocial interventions for caregivers of people with dementia: a systematic review.
Aging Ment Health, 5 (2001), pp. 120-135
[48.]
M.S. Mittelman.
Taking care of the caregivers.
Curr Opin Psychiatry, 18 (2005), pp. 633-639
[49.]
R. Schulz, A. O’Brien, S. Czaja, M. Ory, R. Norris, L.M. Martire, et al.
Dementia caregiver intervention research: in search of clinical significance.
Gerontologist, 42 (2002), pp. 589-602
[50.]
A. Selwood, K. Johnston, C. Katona, C. Lyketsos, G. Livingston.
Systematic review of the effect of psychological interventions on family caregivers of people with dementia.
J Affect Disord, 101 (2007), pp. 75-89
[51.]
C.A. Thompson, K. Spilsbury, J. Hall, Y. Birks, C. Barnes, J. Adamson.
Systematic review of information and support interventions for caregivers of people with dementia.
BMC Geriatr, 7 (2007), pp. 18
[52.]
C. Thompson, K. Spilsbury.
WITHDRAWN: support for carers of people with Alzheimer's type dementia.
Cochrane Database Syst Rev, (2007),
[53.]
C. Wald, M. Fahy, Z. Walker, G. Livingston.
What to tell dementia caregivers: the rule of threes.
Int J Geriatr Psychiatry, 18 (2003), pp. 313-317
[54.]
J. Oyebode.
Carers as partners in mental health services for older people.
Adv Psychiatr Treat, 11 (2005), pp. 297-304
Copyright © 2011. Sociedade Portuguesa de Cardiologia
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