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Inicio Medicina Clínica Toma de decisiones médicas en pacientes con enfermedad pulmonar obstructiva cr...
Journal Information
Vol. 116. Issue 14.
Pages 536-538 (January 2001)
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Vol. 116. Issue 14.
Pages 536-538 (January 2001)
Originales Breves
Toma de decisiones médicas en pacientes con enfermedad pulmonar obstructiva crónica
Medical decisions in patients with chronic obstructive pulmonary disease
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2161
Glòria Miró Andreua
,a
, Miguel Félez Florb, José Felipe Solsona Durána
a Servicios de Medicina Intensiva y Neumología. Hospital del Mar. Barcelona.
b Servicios de Medicina Neumología. Hospital del Mar. Barcelona.
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Article information
Fundamento

Se analiza si un grupo de pacientes con enfermedad pulmonar obstructiva crónica (EPOC) posee información suficiente al respecto.

Pacientes Y MéTodo

Entrevista estructurada sobre el conocimiento de la enfermedad, los deseos de información y de participación en las decisiones médicas y la opinión sobre las directrices anticipadas.

Resultados

Se entrevistaron 78 pacientes. El 92% sabía que sufría una enfermedad crónica y el 63% que era evolutiva, el 50% creyó que podría requerir un ingreso en una UCI y un 33% conocía la ventilación mecánica. Sólo el haber ingresado previamente en una UCI y ser portador de oxigenoterapia domiciliaria se relacionó con un mejor conocimiento de la enfermedad. Un 46% de los pacientes no se sentían informados, pero el 64% de ellos no deseaba más información. La mayoría desearía alguna forma de planificación futura de sus cuidados médicos en caso de incompetencia.

Conclusión

El paciente afectado de EPOC no dispone de información para tomar decisiones autónomas, y aún menos de forma anticipada. El conocimiento lo da la experiencia previa con dicha enfermedad y sus complicaciones.

Palabras clave:
EPOC
UCI
Ventilación mecánica
Información
Testamento vital
Directrices anticipadas
Background

A right information about illness is essential if a patient has to take ethically autonomous medical decisions. We assessed whether a group o patients with chronic obstructive pulmonary disease (COPD) had enough information about their illness to take medical decisions.

Patients And Method

Structured interview about disease knowledge, wills to receive medical information and to take part in medical lesions as well as opinion on advance directives.

Results

Seventy-eight patients with COPD were interviewed. Ninety-two per cent of them were aware that they had a chronic illness and 63% were aware that it was an evolving disease. Fifty per cent believed they could require ICU admission, yet only 33% had knowledge of what mechanical ventilation was. A previous ICU admission and receiving home oxygen therapy were the only factors related to a better knowledge of disease. Forty-six per cent of patients interviewed felt not to be rightly informed, yet 64% of them did not wish to receive more information. Most patients would wish to have some form of future planning of their medical care in case of incompetence.

Conclusion

Patients with COPD do not have enough information to take autonomous decisions. Knowledge is mainly provided by an earlier experience with illness and its complications.

Key words:
COPD
Intensive care
Mechanical ventilation
Knowledge
Information
Advance directives

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