Quality of life in palliative patients admitted to their home: transversal study

Llagostera-Reverter, Irene; González-Chordá, Víctor Manuel; Orts-Cortés, María Isabel

doi:10.1016/j.enfcle.2021.10.005

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These strategies are based, among other things, on survey results<a class="elsevierStyleCrossRef" href="#bib0010">2</a> indicating that the general population and terminally ill patients would prefer to receive end-of-life care at home. However, more studies are needed that assess the factors that influence the quality of life of palliative patients and their families to enable health professionals to design specific interventions.We present as an example the results of a study whose main objective was to determine quality of life and its relationship with the palliative prognostic score, functional status, present symptoms, and social support of subjects receiving palliative care in the Home Hospitalisation Unit of the Hospital Universitario Comarcal de Vinaroz (Castellón).A cross-sectional study was conducted with a sample of 43 subjects receiving palliative care in the Home Hospitalisation Unit. Quality of life (MQOL questionnaire), functional capacity (Barthel Index and Karnofsky Index), symptom assessment (ESAS questionnaire), palliative prognostic score (PaP Score), and social support (MOS questionnaire) were studied. A descriptive, inferential correlational and multivariate analysis was performed using the statistical packages SPSS v.20 and R. The study was approved by the hospital management, respecting the ethical principles established by the declaration of Helsinki. All participants gave their informed consent for analysis of the data.In terms of the profile of the participants, the mean age was 77.14 (± 11.96) years, and 62.79% were men. The mean score of the MQOL questionnaire was 83.23 (±18.87) points and pain was the main physical symptom (m = 7.18 ± 2.09). The correlation between MQOL and PaP Score, Barthel, Karnofsky, ESAS or MOS was not significant. In contrast, a significant correlation was found between PaP Score and Karnofsky, PaP Score and ESAS, Barthel and Karnofsky (p < .05).The results obtained allow us to interpret an average level of quality of life.<a class="elsevierStyleCrossRef" href="#bib0015">3</a> With respect to its dimensions, mean scores can be seen in each of the items that make up the MQOL questionnaire and in their respective total scores, comparing them with other results obtained in the Vanbutsele study.<a class="elsevierStyleCrossRef" href="#bib0020">4</a>Despite the results obtained in this study, where no major needs are identified, in recent years in the field of palliative care, the nurse-patient relationship has been highlighted as an indispensable part of care, since this relationship helps address the suffering of the sick person. There is a lack of consensus in the literature when referring to this relationship, which makes it a nebulous concept,<a class="elsevierStyleCrossRef" href="#bib0025">5</a> although it is evident that it brings benefits to both the patient and the nurse and facilitates care. A greater understanding of the importance of the nurse-patient relationship could result in an increase in the quality of patient care and, therefore, in quality of life.However, this study is not without limitations. The sample size is small and limited to one institution, and therefore the results should be interpreted with caution. Despite these limitations, it is an indication of the real needs of palliative patients through an exhaustive and specific nursing assessment to plan palliative care according to disease stage and the presence of comorbidities.To conclude, although the quality of life of the sample studied is average, it is important to continue developing studies that focus on the dimensions affected by quality of life and their relationship with other variables when designing interventions for patients receiving palliative care." "pdfFichero" => "main.pdf" "tienePdf" => true "NotaPie" => array:1 [ 0 => array:2 [ "etiqueta" => "☆" "nota" => "Please cite this article as: Llagostera-Reverter I, González-Chordá VM, Orts-Cortés MI. Calidad de vida en pacientes paliativos hospitalizados en su domicilio: estudio transversal. Enferm Clin. 2022;32:139–140." ] ] "bibliografia" => array:2 [ "titulo" => "References" "seccion" => array:1 [ 0 => array:2 [ "identificador" => "bibs0005" "bibliografiaReferencia" => array:5 [ 0 => array:3 [ "identificador" => "bib0005" "etiqueta" => "1" "referencia" => array:1 [ 0 => array:2 [ "contribucion" => array:1 [ 0 => array:2 [ "titulo" => "The Palliative Outcome Scale (POS) applied to clinical practice and research: an integrate review" "autores" => array:1 [ 0 => array:2 [ "etal" => false "autores" => array:2 [ 0 => "F. Capella Rugno" 1 => "M.M. de Rodrigues do Prado de Carlo" ] ] ] ] ] "host" => array:1 [ 0 => array:2 [ "doi" => "10.1590/1518-8345.0993.2764" "Revista" => array:4 [ "tituloSerie" => "Rev. Latino-Am. Enfermagem." "fecha" => "2016" "volumen" => "24" "paginaInicial" => "e2764" ] ] ] ] ] ] 1 => array:3 [ "identificador" => "bib0010" "etiqueta" => "2" "referencia" => array:1 [ 0 => array:2 [ "contribucion" => array:1 [ 0 => array:2 [ "titulo" => "Hosptial at home: home-based end-of-life care" "autores" => array:1 [ 0 => array:2 [ "etal" => false "autores" => array:4 [ 0 => "S. Schepperd" 1 => "D.C. Gonçalves-Bradley" 2 => "S.E. Straus" 3 => "B. Wee" ] ] ] ] ] "host" => array:1 [ 0 => array:2 [ "doi" => "10.1002/14651858.CD009231.pub.2" "Revista" => array:3 [ "tituloSerie" => "Cochrane Database of Systematic Reviews" "fecha" => "2016" "volumen" => "24" ] ] ] ] ] ] 2 => array:3 [ "identificador" => "bib0015" "etiqueta" => "3" "referencia" => array:1 [ 0 => array:2 [ "contribucion" => array:1 [ 0 => array:2 [ "titulo" => "A Spanish version of the McGill Quality of Life Questionnaire" "autores" => array:1 [ 0 => array:2 [ "etal" => false "autores" => array:2 [ 0 => "V.R. Tolentino" 1 => "D.P. Sulmasy" ] ] ] ] ] "host" => array:1 [ 0 => array:1 [ "Revista" => array:6 [ "tituloSerie" => "J Palliat Care" "fecha" => "2002" "volumen" => "18" "paginaInicial" => "92" "paginaFinal" => "96" "link" => array:1 [ 0 => array:2 [ "url" => "https://www.ncbi.nlm.nih.gov/pubmed/12164106" "web" => "Medline" ] ] ] ] ] ] ] ] 3 => array:3 [ "identificador" => "bib0020" "etiqueta" => "4" "referencia" => array:1 [ 0 => array:2 [ "contribucion" => array:1 [ 0 => array:2 [ "titulo" => "Effect of early and systematic integration of palliative care in patients with advanced cancer: a randomised controlled trial" "autores" => array:1 [ 0 => array:2 [ "etal" => true "autores" => array:6 [ 0 => "G. Vanbutsele" 1 => "K. Pardon" 2 => "S. van Belle" 3 => "V. Surmont" 4 => "M. de Laat" 5 => "R. Colman" ] ] ] ] ] "host" => array:1 [ 0 => array:2 [ "doi" => "10.1016/S1470-2045(18)30060-3" "Revista" => array:6 [ "tituloSerie" => "Lancet Oncol" "fecha" => "2018" "volumen" => "19" "paginaInicial" => "394" "paginaFinal" => "404" "link" => array:1 [ 0 => array:2 [ "url" => "https://www.ncbi.nlm.nih.gov/pubmed/29402701" "web" => "Medline" ] ] ] ] ] ] ] ] 4 => array:3 [ "identificador" => "bib0025" "etiqueta" => "5" "referencia" => array:1 [ 0 => array:2 [ "contribucion" => array:1 [ 0 => array:2 [ "titulo" => "La relación enfermera-paciente con enfermedad avanzada y terminal: revisión bibliográfica y análisis conceptual" "autores" => array:1 [ 0 => array:2 [ "etal" => false "autores" => array:3 [ 0 => "N. García" 1 => "B. Errasti" 2 => "M. Arantzamendi" ] ] ] ] ] "host" => array:1 [ 0 => array:2 [ "doi" => "10.1016/j.medipa.2014.01.003" "Revista" => array:5 [ "tituloSerie" => "Med Paliat" "fecha" => "2016" "volumen" => "23" "paginaInicial" => "141" "paginaFinal" => "152" ] ] ] ] ] ] ] ] ] ] "agradecimientos" => array:1 [ 0 => array:4 [ "identificador" => "xack602407" "titulo" => "Acknowledgements" "texto" => "We would like to thank the Hospital Comarcal de Vinaros, especially the team of the Home Hospitalisation Unit for their trust in the project, and all the patients for their voluntary participation in the study." "vista" => "all" ] ] ] "idiomaDefecto" => "en" "url" => "/24451479/0000003200000002/v1_202205140807/S2445147922000224/v1_202205140807/en/main.assets" "Apartado" => array:4 [ "identificador" => "66560" "tipo" => "SECCION" "en" => array:2 [ "titulo" => "Letter to the Editor" "idiomaDefecto" => true ] "idiomaDefecto" => "en" ] "PDF" => "https://static.elsevier.es/multimedia/24451479/0000003200000002/v1_202205140807/S2445147922000224/v1_202205140807/en/main.pdf?idApp=UINPBA00004N&text.app=https://www.elsevier.es/" "EPUB" => "https://multimedia.elsevier.es/PublicationsMultimediaV1/item/epub/S2445147922000224?idApp=UINPBA00004N"]

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Enfermería Clínica is a peer-reviewed scientific journal that is a useful and necessary tool for nurses from the different areas of nursing (healthcare, administration, education and research) as well as for healthcare professionals involved in caring for persons, families and the community. It is the only Spanish nursing journal that mainly publishes original research. Its objectives are to promote the dissemination of knowledge, promote the development of evidence in care and contribute to the integration of research in clinical practice. These objective is pursued throughout the different sections that comprise the Journal: Original Articles and Short Original Articles, Reviews, Patient Care and Letters to the Editor. There is also an Evidence-Based Nursing section that includes two kinds of articles: comments about original articles of special interest written by experts, and evidence synthesis articles based on bibliographic reviews. The journal is included in National Library of Medicine/Pubmed/Medline, Scopus/SCImago Journal Rank(SJR), Emerging Sources Citation Index (ESCI) (Clarivate Analytics), CINHAL, Elsevier Bibliographic Databases, EBSCO Publishing, Biblioteca Nacional de Ciencias de la Salud, CSIC/IME, IBECS, Latindex, CUIDEN, Dialnet, Google Scholar Metrics.

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